Individuals battling cancer confronted with large amounts of new information may feel overwhelmed. The number of appointments and medical care dates can crowd their already busy calendar. The number of decisions that are needed each day can be daunting. It is no wonder that many with cancer are thankful for those who step into their lives to help carry the burden.
Patients receiving chemotherapy often talk about chemo brain and the mental fog they experience. Radiation treatments may lead to crushing fatigue that limits activities of daily living (ADLs), such as doing laundry, grocery shopping, preparing a meal, or even taking a shower. Throughout the years, as an oncology nurse, I have heard patient after patient say they can't imagine going through the process without the one who stepped in as their caregiver.
So who are these wonderful individuals who make such a difference not only in day-to-day life, but also in the positive outcomes of oncology patients? Turns out, they are brothers, sisters, parents, grandparents, aunts, cousins, friends, and even co-workers who commit to being available and supportive throughout the cancer treatment journey.
The National Cancer Institute defines caregivers this way:
A person who gives care to people who need help taking care of themselves. Examples include children, the elderly, or patients who have chronic illnesses or are disabled. Caregivers may be health professionals, family members, friends, social workers, or members of the clergy. They may give care at home or in a hospital or other health care setting.
If your loved one is facing a new cancer diagnosis, you don't need any special qualifications. You don't have to be a nurse, a doctor, or another medical professional. You certainly don't have to have all the answers (I know I don't). You are positioned to make a huge impact simply by being available, being the person they can count on.
Caregivers are unique—no two help in the exact same way. You may be able to drive the patient to each doctor's appointment and take notes. The massive amount of information patients receive and then need to keep track of can be burdensome. Having another pair of ears in the room can help reduce anxiety about missing a crucial date or medication name.
Some caregivers help with necessary household tasks. They can cook meals and freeze them so the patient doesn't have to make that dreaded decision of "what to feed the kids tonight." One of my patients years ago raved about her neighbor, who came twice a week to do the family laundry and insisted the patient take a nap while the children were at school.
Some caregivers help keep medical bills and insurance explanations of benefits (EOB) organized or help each month to make sure bills are paid on time. Caregivers step up in many ways to support and care for cancer patients and their families. Many of you earn the title of "Superhero" each day for the ways you step up. No matter which areas you have stepped up to assist with, we see you. We are amazed by you, and we appreciate you.
I hope you will join us for Appreciating Caregivers Part 2 as we discuss the importance of self-care and tips to help you stay physically, emotionally, and spiritually healthy.
